In order to find ways to reduce pain, it is first so important that we name that pain. Finding out what it is leads to learning why it’s there and then how to at the very least reduce pain.
By the time I became a young adult, however, it was time for me to be in charge. I had to make the decisions around the ways in which I travelled and where I went. Because I held everything in my hands from that point on, I saw travelling in a new light. Don’t get me wrong, travelling is still an amazing and joyous experience! Still, I have to be mindful of the ways in which it also wears me out and puts a greater responsibility on me. Depending on whether I am planning an experience of excitement and adventure in memories or a period of rest and relaxation, I have to make many specific changes. I must hold and bring forth adaptations to my actions, my expectations, my plans. This, my friends, is one of the many ways in which I have had to pivot in challenging an illness that has been a part of my life for a long time. It has been a force that I also have to reckon with more as an adult.